Privacy Policy

Your privacy matters to us.

 

Spina Bifida Support Group Foundation ("we," "us," or "our") is committed to protecting the privacy of individuals who visit our website, www.spinabifidaph.com. This Privacy Policy ("Policy") describes the information we collect, how we use it, and your choices regarding your data.

 

Information We Collect:

• Personal Information: We may collect personal information from you, such as your name, email address, phone number, and other contact information, when you:

  • Sign up for our newsletter or email list

  • Register for an event or program

  • Make a donation

  • Request information or support

  • Participate in online forums or discussions

  • Submit feedback or suggestions

• Non-Personal Information: We also collect non-personal information, such as your browser type, operating system, IP address, and browsing activity on our website. This information helps us improve our website and understand how users interact with it.

 

How We Use Your Information:

We use the information we collect for various purposes, including:

• To provide you with information and resources about Spina Bifida

• To connect you with other individuals in the Spina Bifida community

• To process your donations and support your fundraising efforts

• To improve our website and develop new programs and services

• To send you relevant communication, such as newsletters and updates

 

Sharing Your Information:

We will not share your personal information with third parties except in the following circumstances:

• With your consent: We will share your information with third parties if you give us your express consent to do so.

• To comply with the law: We may be required to disclose your information to comply with a court order, subpoena, or other legal process.

• To protect our rights: We may disclose your information to protect our rights, property, or safety, or the rights, property, or safety of others.

 

Your Choices:

You have several choices regarding your information:

• You can opt out of receiving our emails: You can unsubscribe from our email list at any time by clicking the "unsubscribe" link at the bottom of our emails.

• You can manage your cookies: Most web browsers allow you to control the cookies that are stored on your computer. You can choose to block or delete cookies from our website or from all websites.

• You can request access to your information: You can request a copy of the personal information we have collected about you by contacting us at [email address].

• You can request to delete your information: You can request that we delete your personal information by contacting us at support@spinabifidaph.com.

 

Data Security:

We take reasonable precautions to protect your information from unauthorized access, disclosure, alteration, or destruction. However, no website is completely secure, and we cannot guarantee the security of your information.

​

Changes to This Policy:

We may update this Policy from time to time. We will post any changes on this page, so please check back regularly.

​

Contact Us:

If you have any questions about this Policy, please contact us at support@spinabifidaph.com.